Its Official...

Tuesday my mom woke me up way too early and we heading to Rochester (again).  This time for my last NICU follow up clinic, yep, my last one.  And according to my ma, it was one of the most productive ones.  I personally couldn't tell a difference.  But here's the highlights, if you can call them that:


- I am 24 lbs now and 2 feet 8 inches tall.  I'm a big boy :)

- I am going to have another MRI.  They want to see how things have changed since I haven't had one since I was in the NICU.  Plus, this will give them more of an idea on how my development will progress.  I overheard them say that I will need to be put under for this so I stay still, but I am not really sure what they are putting me under... I hope its not too scary. 

- I am going to see a new opthomologist, one that also specializes in neurology.  My mom was pumped to hear this.  She was getting pretty mad at the guy I have been seeing for my appointments.  All he would say is my eyes are fine, but wouldn't talk about what I am actually seeing/comprehending.  So this should be a good visit.

- I am no longer needing to come to NICU follow up clinic because they are switching me to the CP clinic.  So no need to get too excited, I still have to go to appointments, just a different kind.

- And I now have an official diagnosis.... they told my mom that they are going to go ahead and diagnose me with Cerebral Palsy.  I guess this was bitter sweet for my mom, as she has been expecting this and was waiting for someone to actually diagnose me (most doctors danced around the subject), but at the same time I think she was a little sad.  On the drive home, though, she told me of all these really cool and amazing kids that she has worked with over the years that also have CP.  So she will make sure that I am able to do whatever I want to as the years go by.  As she said, "a diagnosis is not going to keep me from enjoying life, it will just make fighting with insurance a tad easier"