I'm Back

Hey All,
Our internet is back (well kinda).  So I thought I would let you all know how things tunred out at my last doc appointments....

- I am now at the 26% for weight - yeah, that's right, I am "on the chart"

- Apparently I gained weight too quickly now, so my doc told my folks to cut back on my feedings.  They also think by cutting back a lil I may not puke as much (we'll see about that)

- My MRI showed the damaged part of my brain pretty clearly.  The neurologist said that the part with the damage is pretty much the vision area and other parts of  my brain are starting to pick up the slack on that - pretty cool I guess!


- The neurologist went out on a limb and told us that he believes that one day I will sit up on my own and walk..... but quickly followed that up with "but we don't have a crystal ball to tell us for sure".  Over the last 2 years me and my parents have really begun to hate the "crystal ball".

- I am now going to be getting braces for my feet called AFOs to help with my standing exercises.

- And, the biggie, I am going to be getting glasses!

Enough with the medical stuff.... I have decided that I am going to let my parents keep my new lil sis. She isn't too bad, and I guess she is kinda cute - when she's not screamin'. I've decided go share a few pics. And, I may even let her write on my blog every now and then (we'll see what happens). Enjoy the pics!

Doctor Day in Rochester

Conner wanted me to update his blog for him today, since he is busy with appoinmtents.  He wants to say sorry for the lack of pictures, our internet has been down.  And he wanted me to let everyone know  that today is a full day up in Rochester.  Conner has appointments with a Neuoropthomologist, a Neurologist, and an MRI - which he will need to be put under for.  Then we come back up Friday for a visit with the GI doc.  Updates from that will come later...

On a good note, last week Conner had his 2 year follow up appointment in La Crosse and he has finally hit the charts!  He is in the 26% for weight.  In fact, his doc says he gained weight so quickly that now we need to cut back on his calories.  Great news since up until this point we have been hearing "you're not feeding him enough".  And Conner also wanted me to let everyone know that his lil sis is doing well and that we have lots of new pics to share with you (when our internet is working again).  Stay tuned :)

We Made It?



The Family with our Event Shirts On!



Our first weekend away with my new little sister went alright.  My dad thought it was gonna be a relaxing time, boy was he wrong.  My folks were worried about Maggie cryin all night, but she actually did all right - as long as my mom kept her happy.  I, on the other hand, was having soo much fun being away from home I didn't want to sleep at all.  In fact, I cried till 2am the first night and till midnight the second night... hehheehe.  Anywho, the Little Miracles 5K and Family Fest was a HUGE success.  I overheard my mom talking with some of her friends - they had 89 runners and over 100 walkers!  And, I don't wanna brag, but my team "Conner and Kaylee's Crew" came in second place for fundraising - we raised over 1,000 bucks...... a big thanks goes out to all of you who helped us do so well!  To top it off, I got to chill with Grandpa for awhile. Then, to make the day even more fun, when we got back to the hotel my mom and dad took me swimming!  Boy do I love the water these days. 

I was soo tired afterwards I actually fell asleep on my side (my mom was pretty excited because I have never slept on my side before - so of course she had to take a picture).



I guess Maggie was tired too!

I was spent!












Then on Sunday we had the NICU reunion.  It sure was nice to see all my ol' NICU pals.  Everyone is getting so big, and looking so good, and moving around so well.  I may not be moving around just yet, but one of these years I'll show them all I can do it too.  Like my mom says, I am just on my own time frame.  So, all and all we made it through the weekend.  My dad got a cold on Sunday, which I later got from him on Tuesday.  My mom tried her hardest to keep us all from getting sick - she quarantined my dad to their bedroom.  Once I got sick she made me and Grandma hang out in my room all day.  And so far her and Maggie have avoided our colds, so she must be onto something.  It was really nice hanging out with Grandma this week - she is helping my mom since things are kinda crazy around here.  Guess my new sis is quite the attention hog.

First Weekend Away

For those of you who don't know, my mom is involved in a group called Miracle Babies.  They just started up this year, and they help out families that are going through the same thing we did when me and Kaylee were in the hospital.  Anywho, this weekend is their first big fundraising event in Rochester - she is pretty excited about it.  It's called Little Miracles 5K and Family Fest.  My dad is going to run it.  Me, Maggie, and my mom are gonna walk.  Then there is a family carnival/fest after the walk.... should be pretty fun.

Just a little plug, if you would like to donate to Conner and Kaylee's Crew - that's our team name - go to http://www.active.com/donate/ourmiraclebabies/CKShay

Me and Maggie hangin out.  I kinda like being a Big Brother!

Anywho, since this event is Saturday morning and I have the NICU Reunion on Sunday afternoon, my parents decided to stay at a hotel for the weekend.  This will be interested with me and Maggie (my new lil sis), at least that is what my mom keeps saying.  But I am pretty excited because my dad is going to take me swimming at the hotel pool and I get to see my Uncle Kurt and Aunt Ashley because they are on our team for the event.  So people, enjoy the pic of me and Maggie and stay tuned for info on how the weekend goes :)